Posts tagged rare disease
Launching a new open access journal – a challenging start but a bright future
Launching a new open access journal – a challenging start but a bright future

No one could have known when Therapeutic Advances in Rare Disease was launched on Rare Disease Day (February 28th) 2020 that we would soon be plunged into a global pandemic the likes of which had not been seen for a century. There were many times when, perhaps more sensible individuals, would have put this project on hold but we decided to push on. We felt that our new Journal had the potential to make a real difference to the rare disease community and who knew how long the pandemic was going to last!?!

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Editor's PicksMaria Pia TissotOpen Access, journal launch, rare disease
February 28th is Rare Disease Day – A day on which the rare disease community shouts to all that can hear RARE IS MANY, RARE IS STRONG, RARE IS PROUD!
February 28th is Rare Disease Day – A day on which the rare disease community shouts to all that can hear RARE IS MANY, RARE IS STRONG, RARE IS PROUD!

But what does that mean? Rare diseases are not rare? Rare is many - There are over 7,000 different rare diseases that have been identified and that number is growing. Collectively, in the United States 25-30 million people, over half who are children, have a rare disease. That is 1 in 10 people have a rare disease – this is almost as many people as have diabetes, and more people than have cancer, HIV, and Alzheimers combined.

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Editor's Picks, ResearchMoazzma Arshadrare disease day, rare disease, disease